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#mhbd, depression, Health Writing Activist Monthly Challenge, mental health day blog, The Yellow Wallpaper
Scrolling through my Twitter feed this morning, I spied a message from Marie over at Journeying Beyond Breast Cancer. “Will you join me for #mhblogday?” Happy to oblige, (it’s Marie, after all), I clicked on the link, and found myself at the American Psychological Association website. There, I learned that May is Mental Health Month and has been since 1949, declared as such by the United States Congress which recognized a need to educate its citizenry about mental health and its importance to our overall well-being. Over sixty years later, and it seems like we still have some talking to do . . .
Today, the American Psychological Association is appealing to bloggers everywhere to join their Mental Health Month Blog Party in hopes of raising awareness about mental health and decreasing the discomfort and stigma around it. The APA is off to a commendable start – “blog party” initially takes the fear out of “mental health” for me and, for a moment, I envision all my favorite bloggers mingling over hors d’oeuvres exchanging ideas on how to debunk all the myths that make mental health a “socially unacceptable” topic of conversation. Why is that, I wonder? Consider depression, which according to the World Health Organization, is one of the most common mental health concerns affecting about 17 million Americans. Unlike the “common cold,” its symptoms unapologetically made public, sniffles and sneezes and loudly blown noses, a tell-tale trail of balled-up Kleenex in its wake, the “common” depression seems more like a secret never to be told.
Easier perhaps to simply camouflage depression with the routines and rituals by which other people have always defined us. Privately we may wonder if the despair and depression following a cancer diagnosis will dissipate soon, and so we wait for it to go away instead of telling anyone about it. We may just accept it as part and parcel of the disease and so it becomes a part of who we are. Like the scars that have altered our bodies. Like the fear of recurrence that may disturb our sleep. Perhaps only those affected by it appreciate the extent to which cancer changes the color of a life being lived, which is why it is so important to talk about it.
Very shortly after the diagnosis, I remember thinking about the woman ensnared within The Yellow Wallpaper . . .
There are things in that paper that nobody knows but me, or ever will.
In some ways, like Charlotte Perkins Gillman’s main character, I too felt diminished. Diminutive within cancer’s giant complexity. Depressed by it. Altered by it. Often wondering if the woman I used to be had disappeared forever within its labyrinth, and willing her to come back.
Why had Charlotte Perkins Gillman written such a story? On this day, it seems fitting to share the story behind her story. In 1913, long before Congress declared May Mental Health Month, she explained:
“Why I Wrote “The Yellow Wallpaper” Many and many a reader has asked that. When the story first came out, in the New England Magazine about 1891, a Boston physician made protest in The Transcript. Such a story ought not to be written, he said; it was enough to drive anyone mad to read it. Another physician, in Kansas I think, wrote to say that it was the best description of incipient insanity he had ever seen, and–begging my pardon–had I been there? Now the story of the story is this: For many years I suffered from a severe and continuous nervous breakdown tending to melancholia–and beyond. During about the third year of this trouble I went, in devout faith and some faint stir of hope, to a noted specialist in nervous diseases, the best known in the country. This wise man put me to bed and applied the rest cure, to which a still-good physique responded so promptly that he concluded there was nothing much the matter with me, and sent me home with solemn advice to “live as domestic a life as far as possible,” to “have but two hours’ intellectual life a day,” and “never to touch pen, brush, or pencil again” as long as I lived. This was in 1887. I went home and obeyed those directions for some three months, and came so near the borderline of utter mental ruin that I could see over. Then, using the remnants of intelligence that remained, and helped by a wise friend, I cast the noted specialist’s advice to the winds and went to work again–work, the normal life of every human being; work, in which is joy and growth and service, without which one is a pauper and a parasite–ultimately recovering some measure of power. Being naturally moved to rejoicing by this narrow escape, I wrote The Yellow Wallpaper, with its embellishments and additions, to carry out the ideal (I never had hallucinations or objections to my mural decorations) and sent a copy to the physician who so nearly drove me mad. He never acknowledged it. The little book is valued by alienists and as a good specimen of one kind of literature. It has, to my knowledge, saved one woman from a similar fate–so terrifying her family that they let her out into normal activity and she recovered. But the best result is this. Many years later I was told that the great specialist had admitted to friends of his that he had altered his treatment of neurasthenia since reading The Yellow Wallpaper. It was not intended to drive people crazy, but to save people from being driven crazy, and it worked.”
Jan Baird said:
I’m flabbergasted, Yvonne! How they treated that poor woman is despicable. I’m sure that kind of attitude pervades some of our medical institutions to this day. As you so eloquently stated, a common cold can be so easily admitted; a depressed state cannot. I had a friend recently tell me I was the only one who could understand her persistent sadness; her coworkers and other friends would slough it off and tell her to smile more if she admitted it.
I just love your words: “cancer changes the color of a life being lived.” My color went from purple to blue overnight. But the blues are slowly fading to pastels, and then into a wallpaper, one in which I will not be trapped. Thanks for this moving post. xx
Yvonne said:
Nothing like being told to smile more when you’re on the verge of tears. Wow. I suppose it’s that idea of “laugh and the world laughs with you …”
So glad to hear the “colors” are changing for you, Jan.
Marie Ennis-O'Connor (@JBBC) said:
Yvonne, I have missed your writing and I think I am just going to have to come up with a new writing challenge to connect us all on a regular basis 😉 I loved reading this, and I was immediately struck by your sentence on how it is easier perhaps to simply camouflage depression with the routines and rituals by which other people have always defined us. Great image!
Yvonne said:
Hi Marie! I never thought i would say that I miss the daily writing challenge, but I think I might 🙂 It kept us all connected.
I read your post the other day and wanted to send an email which I haven’t done yet, but I will. So moved by your description of “the mask” you’ve felt compelled to wear through such sadness. Have been thinking about you a great deal over the past couple of days.
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dropjohn said:
“Privately we may wonder if the despair and depression following a cancer diagnosis will dissipate soon, and so we wait for it to go away instead of telling anyone about it. We may just accept it as part and parcel of the disease and so it becomes a part of who we are. ”
Interestingly enough, for me, it was not the diagnosis nor the treatment nor the fear of recurrence that sent me spiraling into depression but rather the long term and permanent effects of chemotherapy, effects I was not adequately warned about. As Charlotte wrote, I ‘came so near the borderline of utter mental ruin that I could see over’ and easily, at that.
The worst bit about it was that it wasn’t *my* depression, per se – but what I refer to as ‘biochemical fuckery’. Chemotherapy caused premature, sudden, permanent and severe menopause (similar to having an oophorectomy, my body was no longer able to produce any hormones to speak of); this lack of hormones then caused a host of physical and mental problems that I did not know to expect, including crushing fatigue and depression.
Not having been warned about this made it that much harder to cope with, or even to recognize for what it was at first, and being advised to seek counseling or take anti-depressants for what was – to me – clearly a physical problem causing systemic cascade failures… o, that was insult to injury.
I’m not doubting that many people find dealing with cancer diagnosis and treatment depressing – I’ve been on blind dates that were more fun, myself – but I would question how much of the depression commonly seen after treatment is a result of internal processes (as it were) rather than a direct or secondary purely biochemical result of treatment. Even when there are legitimate depressive or anxiety patterns – I am wording this all very badly, and trusting you to interpret – I can’t help but think that they are not infrequently worsened or deepened by the aftereffects of treatment, and that we would all be well served by having these effects acknowledged. It is, at least for me, much easier to deal with biochemical depression when you *know* it’s not about you.
I know my depression was not a result of my fear of recurrence, nor my scarred breast, nor my no longer being in active treatment – I was quite happy to put the ‘slash, poison, and burn’ year of my life behind me. It’ wasn’t the persistent lymphedema in my left arm, nor the entrapped nerves, nor the chemo hair re-growth (sparser, salt & pepper, and not my ‘normal’ texture) that had me contemplating suicide on a more than daily basis – I’m not happy about any of that, but I can cope.
It took me far longer than it should have to realize the root cause of my depression, and far longer than I would have wished to be treated for it. That could have been easily avoided had the doctors acknowledged and informed me about this possibility from the start of treatment.
My guess is that there is a tendency to discount and/or minimize the impact of treatment (specifically of chemotherapy) both before and after care – and, quite possibly, the feeling that if women are informed of this as a possibility, they will then manifest the symptoms (you *know* how suggestible we are!).
This does us all a great disservice.
(all apologies for the length of response – it’s a bit of a rant and then some, I know. I’m just out of the woods, and am still appalled)
Yvonne said:
Oh, I cannot believe I just deleted my response to your response. Grrr … And, as you can imagine, even though it was only moments ago, I cannot remember what I wrote. It might have been brilliant and now it’s gone forever 🙂
I don’t think I was adequately prepared for or warned about the magnitude of the impact beyond the shock of diagnosis, surgery, treatment. Perhaps it’s because I have only recently entered the woods that I attribute to those three, my “altered state.” Forearmed only with what I had gleaned from countless google searches and not knowing the right questions to ask, I have spent much of the past five months as a deer in the headlights. I’m so sorry you weren’t warned about what could have and did happen to you, but glad you are out of the woods.
I am very glad to have found the blogging community … love a good rant, so thank you for it.
Marie Ennis-O'Connor (@JBBC) said:
@dropjohn i just had to comment! The reason I started my own blog two and half years ago was for the very reasons you mention here. NO ONE warned me how I might feel after cancer treatment ended. I passionately believe that more follow-up care is needed to give recognition to the post-treatment phase of cancer survivorship. Sometimes there can be a code of silence surrounding the aftermath of cancer treatment. We can experience feelings of fatigue, guilt, loneliness or depression, alongside feelings of gratitude and a renewed sense of purpose. As we transition from the treatment phase of survivorship, we are not always prepared for the maelstrom of mixed emotions which can hit us.As Yvonne says, the blogging community is a powerful source of knowledge, compassion and healing.
The Accidental Amazon said:
Great post, Yvonne! The Yellow Wallpaper was such a courageous piece of writing. In fact, somewhere in my possessions, I have a copy of it in the original New England Magazine, which I treasure. It’s remarkably ironic that over a hundred years later, we are still combatting the ignorance and stigma attached to mental disorders. It’s crucial that we remember that & keep trying to lift the veil.
Yvonne said:
Thanks, Kathi. I hadn’t thought about The Yellow Wallpaper for years … last time was when my daughter was a baby and I was teaching it as part of a lit class. Back then, the character seemed so far removed from anything that might happen in my life.
Indeed it was a brave piece of writing. I can only imagine what Charlotte Perkins Gillman would think of us all these years later, still struggling with this issue.
P.S.I am so jealous that you have the original New England magazine!!
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Facing Cancer (@cancer2gether) said:
Used to be I couldn’t talk about my feelings without breaking down . . . so I just didn’t talk about them, instead I wrote it out through blogging. Treatment involved feelings I’d never before known: listlessness, hopelessness, despair, deep sadness. I can only imagine how people with mental illness feel when they dive into a rough patch.
Posts like these help us realize that mental illness isn’t far from home, and it’s worth being discussed.
Yvonne said:
Thank you so much for commenting and keeping the conversation alive. It’s the only way to break the taboo around mental illness, and it takes courage.
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Noch Noch (@nochnoch) said:
oh it makes me so angry with the stigma of mental illness. but i must admit i had similar views until i went through depression myself. thanks for helping dispel the stigma here
Yvonne said:
The more we talk about it, the stigma loses its grip.
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mental health girl said:
This is such a good blog, i really enjoyed reading this, it was very interesting, i really like the way your described the depression xx