Tags
Breast, breast cancer, Cancer, Health, John Ashcroft, Northern Ireland, Shankill Road, Susan G. Komen, Susan G. Komen for the Cure, The Troubles
boo·by trap
Meaning: A practical joke. Also a concealed and possibly lethal trap. Noun: A thing designed to catch the unwary, in particular Verb: Place a booby trap in or on (an object or area): “the area was booby-trapped.” Synonyms: snare, trick into doing something“Thirty days hath September, April, June, and November . . .” the rhyme reminds me, as it has done countless times before, that October has thirty-one days, and it is just around the corner. Thirty one days to make us all impossibly more aware of breast cancer. Thirty one days of purchasing pink and running towards towards “the cure” (two words trademarked by the Susan G. Komen Foundation just in case you’re thinking of hosting a similar event “for the cure). The White House will undoubtedly turn pink again and the cashiers at the grocery store will ask me for a dollar towards breast cancer. And when November 1st eventually arrives, the pink ribbons will be unpinned from lapels, the grocery stores will turn from pink to the colors of Thanksgiving. I will breathe a sign of relief, but I will, of course, still have breast cancer.
I am an unwilling conscript to this battle against breast cancer. I don’t want to be a fighter or a survivor or a pink warrior. I’d prefer living without having to hold my breath every so often, wondering as I did some forty years ago in Marks and Spencers on Belfast’s Royal Avenue, if the bomb scare is just that. A scare. A hoax. In my world today, the suspicious devices come in the form of tumors and test results, in waiting and worrying, in scheduling more time to spend in waiting rooms. And they come in pink ribbons and half-truths about mammograms and early detection. The whole sorry business saps my energy. I have things to do. Mundane things, but they matter nonetheless – laundry and shopping. I like my clothes clean and the refrigerator stocked. But in October, I avoid the dry-cleaners, but I cannot avoid the grocery store and its shelves of pink merchandise.
For eleven months of the year, reconnaissance missions to the dry-cleaners or the grocery store pass without incident. No camouflage is necessary and only minimal intelligence required. In October, it is impossible to pass through the Safeway checkout line without being hijacked by a cashier whose job it is to ask me to donate a dollar for breast cancer. If I say yes, she will bellow into the intercom, “I just got a donation for Breast Cancer. Can I get a Woo Hoo?” And, as they scan coupons and fill bags, paper or plastic, with other people’s groceries, a chorus of cashiers and bag-boys will, as automatons, respond, “Woo Hoo!” and I will flee. I will feel only slightly guilty that I asked how much of my dollar would support breast cancer research, knowing that my question rendered her uncomfortable. But I will be more concerned that she has not been told how to answer my question except with a receipt and a “Have a nice day!” The young woman at the cash register is caught in the same trap with me – woo-hoo!
There are other grocery stores, less pink-ified, but they are few and far between. Even speciality stores are dressed out in pink, in an almost festive observance of breast cancer awareness month. I suppose you could call it a breast fest. Bizarrely, this brings to mind Loyalist areas in the Northern Ireland of my childhood. In anticipation of “marching” season, Union Jacks and flags bearing a red hand hung out from bedroom windows of council houses, proclaiming allegiance to the Crown. Red, white, and blue bunting stretched from house to house, and pavement curbs were roughly painted in homage to British rule. Slogans spray-painted on otherwise scrubbed gable walls, echoed an imperative “Belfast Says No” that hung above the city’s hall in the 1980s and in our faces. It was unavoidable even for those of us who wanted to remain anonymous, ordinary people for whom the moral imperative was peace. Boldly marking territory in no uncertain terms, those banners and badges were divisive, as incendiary as the booby-trapped cars that lay in wait for the part-time police officer who, in a hurry to get home for a birthday celebration, failed to check under his car before turning the key in the ignition.
Perhaps it is over-wrought to compare breast cancer awareness campaigns to shows of loyalist strength that often culminated in sectarian violence and murder. The parallels are real to me. The bunting that zig-zags across the skies of the Shankill Road is not much different from the arch of balloons that float above the “KomenPhoenix” finish Line in downtown Phoenix. I did not participate, much to the chagrin of acquaintances who know I have breast cancer. Why wasn’t I part of Komen’s “circle of promise?” they asked. Couldn’t I tap into the power of positive thinking? Why do I have to be so negative about breast cancer? Come on! Can’t you ferret out a silver lining? Make a silk purse out of a sow’s ear?
“Imagine a life without breast cancer!” the Susan G. Komen Foundation urges. Alright. I imagine it every morning when I wake up or when I push to the back of my mind the possibility that the twinge in my hip is a harbinger of recurrence. I imagined it during an unguarded moment in Bed, Bath and Beyond, the sole item on my agenda, a new duvet cover. I had barely crossed the threshold, when I was told to Fight like a Girl:
Even the tic tacs on display were pink, as was the pasta and the over-priced machine used to make it. I did my due diligence and visited the The Pasta Shoppe website, where I learned that 10% of proceeds from the sale of fun-shaped pasta will go directly to the Susan G. Komen Foundation.
Susan G. Komen was only 36 years old when she was killed by metastatic breast cancer In the blink of an eye, just three years, it ravaged her body. The organization subsequently established by her sister, however, has failed to appropriately address the kind of cancer that killed her. Instead, the Komen foundation has relentlessly emphasized early detection and awareness. Sealed it with a pink ribbon, it is just not good enough. Not for me. Not for my daughter. Nor yours.
What would Susan G. Komen say about our progress, or Rachel Carson, who fifty years ago, warned us about pesticides and their link to cancer. Breast cancer killed her too. She would have something to say, I know, about last year’s limited edition pink ribbon tic tacs. While I do not know how much of the tic tac proceeds went towards breast cancer research, I know they contain corn gluten, which is cause for concern. For Susan and for Rachel, for you and for me, Breast Cancer Action urges us to ask these Critical Questions Before You Buy Pink:
- Does any money from this purchase go to support breast cancer programs? How much?
- What organization will get the money? What will they do with the funds, and how do these programs turn the tide of the breast cancer epidemic?
- Is there a “cap” on the amount the company will donate? Has this maximum donation already been met? Can you tell?
- Does this purchase put you or someone you love at risk for exposure to toxins linked to breast cancer? What is the company doing to ensure that its products are not contributing to the breast cancer epidemic?
Breast cancer can no longer be covered up with pink ribbon purchases that manipulate us into feeling good about ourselves. It is an epidemic but it has been trivialized, glamorized, feminized. In October, it is more about the boobies and less about the disease. The slogans and the pink wristbands, the trappings of breast cancer become fashion accessories. For thirty-one days, we are told “to save the tatas” and reminded to “feel the boobies.” Baby-talk, sugar and spice and all things nice, the stuff of fairy-tales. Even the President of the United States will sport a pink breast cancer awareness bracelet.
I may be way off the mark, but somehow I cannot imagine our nation in the grip of a “Feel my Balls” campaign. Can you? In 2013, America is still confounded by sex and gender; thus, guarantees of life, liberty, and the pursuit of happiness for everyone, ring hollow. Somewhere within the ‘Spaghetti Junction’ of stories that spin to advance political agendas and generate massive profits, lies the truth about the way things are and how they appear to be. A glamorous pink ribbon wrapped around an Estee Lauder model seems more socially palatable than a bald and fragile, vomiting cancer patient in the throes of yet another grueling, poisonous chemotherapy treatment. And then there are the men with breast cancer. What about them? What about the families of over 2,000 men who died from breast cancer in 2012?
Confronting the chilling reality of breast cancer is non-negotiable. It is time to ask the questions that will quell the rising tide and to demand answers, to hold accountable those in power to mandate mandate meaningful action, beyond the breasts and into research of the cancer that kills.
It was a decade ago when BBC News reported that then United States Attorney General, John Ashcroft, asked the United States Department of Justice to shell out $8,000 for drapes to cover up the exposed right breast of The Spirit of Justice statue. The offending art-deco figure was often photographed behind him while he spoke to the media. Was it too life-like? Too real? Too much woman for him? Would a pink ribbon in front of the White House have been more acceptable? Regrettably, I think it might.
Breast cancer is ugly, and it hurts. Awareness campaigns hurt too, especially when they focus on the same old stories of early detection and treatment regimens that have been prescribed for decades – some combination of surgery, radiation, chemotherapy, hormonal therapy. Especially when such campaigns focus on everything other than what must be done to figure out what causes breast cancer in the first place, how to prevent it, how to stop it from metastasizing. What I wish I had known before running all those races and believing that the mammogram was the perfect test is what METAvivor President, CJ (Dian) Coreliussen-James warns:
“People do not realize that metastatic breast cancer is widespread and deadly, and that it strikes on whim and takes 41,000 American lives every year. Survivors think they are safe because they are 5 years out … or were diagnosed early … or were told they are ‘cured,’ but MBC plays by its own rules.People diagnosed at stage 0 as well as 30-year survivors can and do metastasize. You feel great one day and the next day learn you have MBC. Your life can change that fast.
So what will you do this October? How will you navigate the sophisticated booby-traps all around you? Be vigilant. Don’t fall for it just because of the nice pink ribbon. Ask questions.
It’s not all about the boobs . . .
ayearinredwood said:
So very well said. Bravo!
Editor said:
Thank you … my annual rant.
ayearinredwood said:
long may it continue… keep ranting!
Editor said:
So here’s something funny. Here I was thinking you were in California in the Redwoods, but no!! You’re in Tipperary!! This is why I love the blogosphere. (My brother and his wife and kids are in Limerick now, but I think her family is from close to Tipperary.
Now what is it about ironing, anyway? I swear to God I think it’s in our DNA. All the best advice ma gave me was over the ironing board. Do you know this lovely poem by Heaney??
Old Smoothing Iron
Often I watched her lift it
from where its compact wedge
rode the back of the stove
like a tug at achor.
To test its heat by ear
she spat in its iron face
or held it up next her cheek
to divine the stored danger.
Soft thumps on the ironing board.
Her dimpled angled elbow
and intent stoop
as she aimed the smoothing iron
like a plane into linen
like the resentment of women
To work, her dumb lunge says,
is to move a certain mass
through a certain distance,
is to pull your weight and feel
exact and equal to it.
Feel dragged upon. And buoyant.
*******
ayearinredwood said:
Yes isn’t it a beautiful piece… all those memories make me love ironing!, and I know what you mean about Redwood = California… that was where I first came across the Redwood tree. But here I am living in a tiny, REALLY TINY place in North Tipp called Redwood. Limerick is only 1 hour away… your brother should come visit!
Editor said:
wouldn’t it be funny if you all knew each other 🙂 It IS Ireland after all!!
Barbara Autrey said:
What can I say? A perfect article. It’s on my wall; I hope others will share it.
Editor said:
Thank you. The really important thing is to encourage everyone to ask where their money is going.
Please direct folks to the bcaction.org
Thanks!
y
Lois Hjelmstad said:
Love the “Feel the Balls” campaign.” As if THAT would ever happen.
I get angry every evening when I watch the news – men buttoned up to their Adam’s apples, women with their plunging necklines. Maybe it’s because my plunging neckline would show wrinkles and a radiation tattoo. But it’s more likely because we continue to let ourselves be sex objects.
And I get angry every October as the world wraps itself in pink and donates pennies on the dollar to whom? It is so true that breast cancer has become “the in-thing,” razzle-dazzled, piddling.
So, I loved this post – very articulate and right on point. Thank you, Yvonne, for another great article.
Editor said:
As if indeed, Lois! I just think it’s important for people to know what to say when bombarded by pink. I’ve been in that position so many times and just handed over money without asking a single question.
Thanks very much for stopping by and lots of lots of warm wishes on your wedding anniversary!
yvonne
Lois Hjelmstad said:
Thanks for the anniversary wishes! We are feeling so lucky.
Editor said:
and I’m feeling very lucky to know you, to have your books and all those wonderful glimpses into your lives together.
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karen sutherland said:
dear Yvonne,
well, my dear, you’ve accomplished quite a body of work with this one. and I do see the link with the pink and The Troubles because you articulated that part so well. and I loved the insertion of the request Ashcroft made to appropriate $8,000.00 for drapes to cover an exposed breast of STATUE. HOLY CRAP, eight thousand bucks could have been a tidy sum for BC research, yes?
I sometimes become so over-wrought with anger and frustration that I wish every single one of us who GET IT could record a very l-o-n-g loop of video where every thought, every worry, every memory of every day we have lived with BC, and METS. every moment of puking our guts out after chemo, every emotion experienced when fatigue and pain decimate us, interfere with work or, worse when we end up getting fired from our job, the whole issue of chemobrain, the financial havoc of poor or no health insurance, the sadness and fear that many of us won’t live to see our children grow up, the mothers, the fathers, the children, the dear friends who suffer the impact of watching their loved ones feeling overwhelmed with helplessness and grief, the draconian and painful surgeries and radiation along with all their ravages in the aftermath, the scans, tests, the never-ending long waits for results – ALL OF IT – and by some magic it could be implanted in the brains of those who DON’T GET IT. and. there. is. no. way. to. turn. it. off. I know this must sound terribly diabolical, but when I feel this angry I resort to just this sort of thinking – I know, frustration truly running amok,. where’s Frankenstein when we need him??
much better that we have you and your eloquent and intelligent urgings to be more vigilant and put things into perspective, to see where and how we need to exercise being more discriminating, ask questions, and get informative and true answers to the show me the money issue. thirty-one MoFo days – and September isn’t even ended.
UGH!
love and light and a big thank you to you, Yvonne, XOXOXOXO.
Karen, TC
Editor said:
Karen,
It is so good to hear from you. I was just thinking about you recently – following the death of Seamus Heaney. I found myself thinking of your children and his, left holding the kite in that lovely poem **Sigh** It felt like a personal bereavement for me; it really did. I don’t think one day of my adult life has passed without a Heaney moment or two.
Thankfully. It was Heaney’s poetry that kept me going when I started to rant and rave about all things pink, about all of it, the unfairness, the money, the fatigue, the death, ALL THAT DEATH, all those families ripped apart by the way it just creeps into our lives and turns everything upside down. I hate cancer. And it was Heaney who helped me find a voice so I would not “cast the stones of silence.”
Not very eloquent most days, but at least I have cleared a path to the things that matter and the things that need to be said.
Love and light to YOU, Karen dear.
xo
Y
lesleypr said:
Blimey, Yvonne, you’ve truly made me think about this. I don’t have breast cancer – but in the past five years the bastard has taken two dear, gorgeous friends of mine. I always thought that supporting BCW here was the right thing to do, and that, in some way, I was showing support for them. Of course the real support, the support they actually needed and genuinely wanted, was popping round for a coffee, taking them out for lunch, baking them some cookies, giving them a good book to help get through the chemo sessions, telling them that their wig was crooked – or that they looked mighty damn fine when they did. I did do all of these things – but not enough. Definitely not enough. And if I had my chance again I’d exchange every bloody penny I’ve spent on a pink ribbon for another hour with them. Another coffee. Another cookie. Another book.
I won’t be buying one this year.
Thank you.
Editor said:
Well, I just deleted everything I had written. Honestly, I know nothing about the organizations in Northern Ireland; maybe they are different, but here it is a Breast Fest every year. PINK EVERYWHERE!!! and me like an eejit (until I was diagnosed) running bloody races, and deliberatley buying only those products with pink ribbons on them. It makes me INSANE.
Oh, my favorite two examples of Pinkwashing?? You’ll love this. It’s very classy …
1. Avon sponsors breast cancer walks every year but uses parabens and phthalates in some of its cosmetics. (and what do we know about parabens??)
2. My personal favorite: AstraZeneca, the company that came up with Breast Cancer Awareness Month?? Well, they manufacture Tamoxifen but they are also the 3rd largest producer of pesticides in the USA AND they took over Salick Health Care Breast Cancer Treatment centers. Guaranteed income, there.
Oh. Don’t Get Me Started. But do check out Think Before you PInk. Those folks are AMAZING.
bcaction.org
Editor said:
Ah, Lesley,
I would be lying if I said I knew anything at all about the Northern Ireland charities. Maybe they are different and aren’t driven by corporate profit. I don’t know. But BC Action and Think Before you PInk have great questions to ask.
I just can’t BEAR October here and the way in which this bastard of a disease has been minimized and trivialized. And it’s the pink that gets all the attention. What about all the other cancers, what about the cancer itself and the way it spreads and kills? What about the bloody men who get it. Oh, it just makes me insanely angry.
For years, I blindly contributed without knowing where my money was going. Instead of the regular brand, I felt pressured to buy the one the pink ribbon on it. Without even asking!!?? What kind of examined life is that?? And then the races. Oh God. I took Sophie to three, all pink feather boas and pink bracelets and pink drinks.
You must watch Pink Ribbons Inc. if you haven’t already. That’s what changed me. I first saw it when I was recovering from the mastectomy and I knew I had to, well, talk about it.
Then, there’s my favorite. The pharmaceutical company that makes my cancer medication?? Well, bless them, they came up with Breast Cancer Awareness Month.
AstraZeneca, the wizard behind Pink October, manufactures Tamoxifen but also is the the 3rd largest producer of pesticides in the USA AND took over Salick Health Care Breast Cancer Treatment centers. I’d say they have job security, wouldn’t you? Bastards.
Oh, and then there’s Avon which sponsors breast cancer walks every year but uses parabens and phthalates in some of its cosmetics.
Now I’m all pissed off again. But I’m all set to do something different this October with BC Action and very excited about it. More later …
Doris McGreary said:
Hi Yvonne – thoughtful post. The pink ribbon thing isn’t quite as big in the UK but it is growing and yes the ribbons are becoming a fashion accessory here. My brush with serious illness, though not cancer was bowel related. Wonder how they would promote bowel cancer charities? Brown ribbons…..Not quite as pretty.
Editor said:
Not quite, Doris, and if isn’t pretty, we don’t want to see it, right? Better to keep all the unpleasantness out of sight in case we offend anyone . . .
Victoria said:
It’s pretty pinkless here in Paris. No ribbons or posters or anything related to pinktober in the stores or on the street. Maybe it’s an anglo-saxon thing? 🙂
I did attend the Odyssea march last Sunday with some Franco-American friends. It was good.
A brilliant post, Yvonne. Thank you.
Editor said:
Thanks, Victoria. Maybe it IS an anglo-saxon thing, but I’m guessing it’s more a profit thing. 😉
Planning to go to Ireland in a couple of weeks. Very excited to put my feet down on the ‘oul sod again.
Martha Brettschneider said:
Hi Yvonne — Sorry it’s been a while since I’ve checked in!
This is such a brilliant piece. I was wondering if you’d consider guest posting it on my blog? I don’t have your email address and couldn’t find a contact link on your site. My email is marbrett2@gmail.com.
Let me know what you think!
Martha
Editor said:
Hi Martha – so good to ‘see’ you! Would love to guest post.Thank you
y
Editor said:
Reblogged this on considering the lilies and commented:
This will be my only post about breast cancer awareness month. I’m aware.
Greet Grief said:
Thank you for this thought provoking message, I posted it on my FB page for all to read!
Editor said:
Thank you!
Lois Hjelmstad said:
Just the other day someone (I can’t be sure who) said, “We are so grateful we caught it early.” Maybe catching it early is better than catching it late, but sometimes it doesn’t make any difference and so few seem to understand that.
It drives me nuts to hear so much misinformation. It’s my 84th birthday today and I’m just too old to be nuts. 🙂