Tags
Breast cancer as family issue, children of cancer patients, density, Detection, JP Drains, know your body, mammograms, Mother daughter relationship, pink ribbon culture, Pink Ribbon Culture, self-exam, Stage 2 breast cancer, war metaphors, warrior, Wilfred Owen, World Cancer Day
I didn’t know about a World Cancer Day. Until today, I’d known only about Breast Cancer Awareness October when the world seems to turn pink for an entire month. Since October 30th, when I found the lump on my breast – and, believe me, I am thankful to have made it until the end of the pinkest month, blithely unaware of cancer having settled in, I swear I have encountered more metaphors of war in the literature about breast cancer, than I ever found in my collection of Wilfred Owen’s poetry. Let me be clear. Within the context of my breast cancer, I show up – albeit, reluctantly – for every appointment, procedure, and surgery. I am a cancer patient. I am being treated. Obedient. Not battling. Not a warrior in pink.
I cannot say the same for my darling girl. Just a heart-beat ago, she was asleep and swaddled, nestled perfectly in the space between the crook of her father’s arm and the tips of his fingers. Safe and secure. Then, fourteen and tall, trying to be strong, leaning on her beloved dad and he on her as they wait together for surgeons bearing good tidings. Neither of them feels safe or secure. She is fighting so hard to keep the tears from falling, squaring up with false bravado to confront the fears of her mother dying. Oh, how she doesn’t want to be the kid with the sick mom. Who would? She doesn’t want her teachers to feel sorry for her or her friends to tiptoe around her as though on egg-shells. A quick study, she has grown keenly aware of the pink stuff of breast cancer and is confounded by it, not knowing what to say about all those “I love boobie bracelets” wrapped around teenage wrists when her instinct is to defend me because I was unable, technically, to “keep a breast.“
Fourteen. Shouldn’t fourteen be reserved for rebelling a bit and rolling your eyes at your mother’s taste in clothes or music because, well, she’s your mother? For pushing boundaries and buttons and experimenting with the way you sign your name or style your hair? That’s how fourteen was for me. For my daughter, however, this rite of passage has been forever marred by her mother’s breast cancer diagnosis, before which she didn’t have to feel quite so guilty about perfectly acceptable acts of rebellion. It is unforgivably unfair. But that’s the nature of breast cancer, isn’t it? Unfair. Lest I forget how it has interrupted her life, I am considering again today the first time my daughter spoke of the cancer that came to our house like a thief in the night . .
I didn’t know – and I’m sure I still don’t – the extent to which this breast cancer has shaken our beautiful daughter, stirred a fear that others dear to her are at risk. So when I read the note she posted on her Facebook page on February 4, 2012, World Cancer Day, I realized our girl needed to tell – to share with anyone who would listen, in one fell swoop, that cancer had come calling and that her mom was sick, to tell them that being aware means you have to actually do something. She’s the warrior. She’s my hero. Here’s her note:
In honor of World Cancer Day and my mom, I’m telling the truth …
“Each and every one of you reading this note, know this: you are important to me. And I don’t ever want to lose you. Please be aware. Do not think that just because you’re you, breast cancer won’t harm you. Infect you. Frighten your family. Breast cancer doesn’t discriminate. You can’t escape from it. And my mom, my dad, and I had to face up to that harsh reality. On November 11th of 2011, my mother was diagnosed with Stage 2 breast cancer. She told me everything her doctor had told her. About how she had three tumors, and how they had been probably hiding there for five to seven years. Three. Three of them, just sitting in there for all that time, never to be found by her mammograms because they were hidden so well in her tissue. Fortunately, two of the three were benign, meaning they would not hurt her. They were not cancerous. However, one of them was a cancer. Malignant. My mother’s right breast had a cancerous tumor. My mom had cancer. Mom had cancer. I didn’t hear much more of what she said. After she said “tumor” and that only “two out of three” were benign, it was hard to really hear her. All I could say was, “But you’re going to be okay…. right?” I asked that question maybe four times in a row. I remember later on she and my dad told me about the next doctor’s appointment, during which she would find out which surgery was best for her. A lumpectomy or a mastectomy. It sounded like she was hoping for a lumpectomy, which would only remove the tumor. It sounded simpler, but it also meant radiation. Which is nasty. A mastectomy means remove a whole breast. Soon I found out my mom’s treatment required a mastectomy. I would be out of school for a week.
That week, I stayed at my mom’s best friend’s house; Amanda’s house. Amanda is like our own family; she has known me ever since I was little. I stayed at her house once before, when my dad had major heart surgery. Now again, I stayed with her while my mom was going through surgery. Seven and a half hours. An entire school day of waiting. Then my dad, who waited the whole seven and a half hours in the hospital, called to tell me the news. My mom was okay. The surgeons were very happy with the results of not only the removal of the tumor, but the reconstruction of her entire breast.
I remember seeing her in the ICU, when she woke up from the surgery. Her skin was so white, as pale as Boo Radley‘s. Her normally inky blue eyes now reminded me of a colorless sky. I cried at the sight of her. She looked dead. She had been given lots of morphine and other medicine, so she was way beyond groggy. Out of it. And then she was able to smile. She squeezed my hand, and she asked me what day it was . . . four times. Thursday, Thursday, Thursday, Thursday. I cried. My dad cried. He wiped his eyes on his shirt. We just stood there crying, rejoicing that my mom was going to be all right.
After removing her original breast and the cancer, her surgeons used skin and tissue and fat from her abdomen and molded it into the shape of a new breast. It was amazing. Today, her reconstructed breast looks almost identical to the other one. Made from her own skin, it looks fine. Just a bit bruised. But those bruises will fade, and this cancer will become just a bad memory. Unfortunately, we still have some healing to do. There’s a large scar across her abdomen, and it hurts her to stand up straight. If she lifts her right arm too high, it hurts. Then there are the tubes and the three surgical drains. Attached to my mom were three tubes which then attached to what looked like little plastic grenades. Every day, I’d help drain the bloody fluid from them and record how much on a chart. Two have been removed, now there’s only one drain left, attached to a tube from a hole under her right arm. And then there’s always the fear that the cancer may return. Yes, her cancer was removed, but maybe there was some that the doctors couldn’t find and it could scare us again. It could invade my mother’s body once more. It could invade anybody. Which is why I’m begging: get yourself checked out. Find out your breast density. Do self-exams. Please. And it’s not just women. Men can get it too. SO if you’re a guy and you’re wondering why I tagged you in this, there’s your reason. So please. My mom discovered her cancer before it had spread into her lymph nodes. She got lucky, because she found the lump by accident and because her doctor made her get an ultrasound. She learned just in time that her negative mammograms had missed the cancer.
Many women, just like my mom, never even check their own breasts, even though they have been told over and over. It is so important to know what our breasts normally feel like, so we can notice when they change. So please take the steps to know your breasts, to know your body!”
Marie Ennis-O'Connor (@JBBC) said:
This is so powerful and touching – thanks for sharing x
Yvonne said:
Thank you, Marie. She is wise beyond her years – stops me in my tracks, sometimes.
Nancy's Point said:
What a touching post. Thank you so much for sharing your thoughts as well as your daughter’s. Cancer is a family affair for sure and not a good one. And, by the way, I agree about the over-use of war metaphors.
Yvonne said:
Thank you so much. I’m a newcomer to all things breast cancer, and it galls me to my very core that my girl’s 14th year had to be interrupted like this. So unfair.
Jan Baird Hasak said:
Thanks for bringing this awareness to your readers. My son was only three when I was first diagnosed. All he remembers is his mom having breast cancer. It scared him and angered him. Music became his outlet, and now it is his life. It IS so unfair. Thanks for your heart-felt post. XOXO
Yvonne said:
Thanks, Jan. It is indeed so terribly unfair – and completely unacceptable – that after all these years, all the billions spent, all the races run, that we STILL can’t tell our children how to prevent this scourge. Thank you.
hjelmstd said:
Your daughter is brave, brave, brave. What a hard thing for a 14-year-old. But a young woman like that can be so strong and so wise.
Hug her often and long!
Yvonne said:
Yes, she is. And I do!
Thank you!
Terri said:
Wow – your daughter is so wise and a real writer in the making. Thank you for sharing such a beautiful and moving post. I got diagnosed at 30 – before marriage and kids – and there were days when I felt beyond lonely that I had to go through it without a little family of my own. But, your daughter’s beautiful words reminded me how difficult cancer can be on the whole family. Sending all 3 of you love and blessings.
Terri
Yvonne said:
Terri, thank you for this. Yes, it is just plain wrong that any one of us should have to go deal with cancer. I cannot imagine my 30 year old self coping. I really can’t. I can tell you my 48 year old self is panicking. Like you, I also feel an anxiety about the way I used to be, and I know others want me to resume that pre-breast cancer life. But I don’t know that I can. Something has shifted in me, for sure. As for my girl, I am utterly undone by her grace and her words. Love … yvonne
Anne said:
I found it hard not to cry when reading this. My daughters (twins) were 16 when I was diagnosed with BC, and I know they had a hard time coming to terms with it – one of them in particular. It wasn’t any easier when i was diagnosed with ovarian cancer just 18 months later. Thankfully I’m now in my 6th year of disease-free survival and we appear to have picked up the pieces and moved on. Yet every time I have a doctor’s appointment (even for a minor ailment and totally unrelated to cancer) they become alarmed and I know they still worry a lot about me. Your daughter is incredibly strong and brave and I hope that very soon you can all look back and see your cancer as just a bad memory
Yvonne said:
Anne, I think I’m finally beginning to better understand how my diagnosis crashed into the lives of those dearest to me causing them so much worry and fear. I cannot even imagine how terribly hard it must have been for you and for your daughters to see you diagnosed with breast cancer and ovarian cancer. I can understand how their hearts skip a beat every time you have a doctor’s appointment. I am so sorry. It is just so, so unfair.
Thank you so much for your good wishes for us. y
feistybluegecko said:
What a powerful post, and so beautifully written. What strength and eloquence combined. I shared this on my facebook page, and (unusually) my daughter commented as it really struck a chord with her. She is 31 and facing a scary time too just now.
I have only just found your blog, thanks to Marie, and catching up. Sending you very warm wishes and hugs – you are not alone here
Philippa (aka Feisty Blue Gecko) xox
Yvonne said:
Oh, Philippa, thank you so much. My daughter is a lover of language, but doesn’t always share her writing with me, so her very public message just floored me. Definitely not alone, I’ve realized, since finding people like yourself and Marie. Your feistiness has helped me through some days when the fear just wouldn’t subside.
I am sorry your daughter is facing a tough time and I am sending the very best to you both.
yvonne
Catherine Brunelle said:
Amazing post- your daughter is a young woman of incredible courage. This post makes me wonder how other people cope through our treatments and journey. Luckily your daughter has that outlet (and a fantastic sensibility in her writing) . . . Cancer, as always, is a disease that ripples.
Good luck to you and your family. I’m so happy to have found your blog 🙂
Catherine
Yvonne said:
Catherine, thank you. I was completely undone by my daughter’s kindness and bravery, and I’m glad she decided to put pen to paper.
Our little family is not too far into “the journey,” and you’re right … cancer’s ripple effect knows no end. So it’s time to make a few ripples of my own, and I am so grateful for the encouragement I’ve found from women like yourself. I was so nervous, at first, about telling the whole story of my breast cancer, as though it were my fault somehow, but I am learning how to have conversations about it.
Happy to have found your blog too!
yvonne
Gayle said:
I sit here with tears running down my face. I’m having a staring contest with my computer monitor. I see hurt, sadness, worry, loneliness, scars, needles, drips, monitors… I remember the sounds of the monitors beeping. I grab the small photo album I managed to piece together nearly 10 years ago, when, like you say, “cancer came calling” to our 20 year old son. I’m a bit reluctant to open up the cover and not sure I have the strength to turn the pages that captured parts of the horrific ordeal. I remember the difficulty I had even saying the word “cancer”, when he was first diagnosed. We thank God nearly every day for the good health he enjoys today.
I think of Sophie and the harsh reality, with absolutly no preparation, your cancer diagnosis has had on her. From her blog, it’s apparent she’s an amazing young woman. I pray her subsequent blogs are about your good health and enjoying a full and happy life with the parents she loves.
Thank you for sharing this with me, Yvonne. Both your message and Sophie’s message proved to be a good reality check for me and good reminders of what’s really important in life. I’m so sorry you’ve had to deal with this horrible illness. Live strong.
Yvonne said:
I am just so sad that cancer moved in on your lives. I have seen my husband and daughter try so hard to hide their anxiety from me, but I know they are worried and heartbroken. The same is true for my parents and extended family who live so far away – I can hear every worried syllable when we talk on the phone. Honestly, I cannot imagine this from the perspective of a parent. It is just so wrong, so unfair, in every way. I can relate to the fear of saying the word out loud. When you say it aloud, it becomes real, and then the fear sets in, I think. I have found incredible support from very kind strangers in the blogging community. Because of them,I think I was able to go back to work. Because of them, Sophie found her voice too. I hope you take great comfort in seeing your son in good health every day, and I am so sorry that you had to go through such a terrible ordeal. Noone should have to. Noone.
Yvonne
Kara McBurney said:
How truly amazing and courageous – both you AND your daughter! I work for a non-profit in Greensboro, NC (Earlier.org – Friends for an Earlier Breast Cancer Test) – our sole mission is to fund research seeking an earlier biological detection test for breast cancer…so that women EXACTLY like you don’t have to walk around with this disease lurking for 5 to 7 years!! This is ridiculous! It is the goal of each and every one of our researchers to identify a biological test – a blood, saliva, etc. TEST that will identify breast cancer in the body far earlier, hopefully before a tumor has even formed. With your permission, I would like to publish portions of your blog entry in the Guilford County Women’s Journal…a local community publication dedicated to health and wellness issues and primarily targeted toward women. Your story is all to familiar. Our founder had a “clear” mammogram in December and by March, was in surgery having a malignant tumor – found by her dog! – removed from the inside of her chest wall. She is a 20 year survivor this month! Thank you for sharing your very personal story!!
Yvonne said:
Kara
I am just dismayed to learn that there are so many millions of stories just like mine and that, until we have a very different kind of conversation nationally, there are likely to be more. I am outraged that this cancer languished in my body for so long. I never thought to question a mammogram. I never thought to ask about breast density. I was completely conditioned to a culture where it seems almost acceptable for so many of us to walk around, completely in the dark about the realities of the disease. I’m slowly learning to separate myth from fact. As such, I am happy to add my voice the voices of so many who want to see a radically different approach to breast cancer and you are most welcome to publish those portions of the blog that may be helpful in supporting your mission.
sparkyseestheworld said:
I can’t believe that was written by a 14 year old. You have a very wise, mature and beautiful daughter! This blog is incredible. Sending you lots of love 🙂 XxX
Yvonne said:
Thanks Em! She is a braveheart … as are you.
xx
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Nancy's Point (@NancysPoint) said:
This is a very touching and powerful piece, Yvonne. Sometimes we don’t fully realize the impact our diagnosis has on our loved ones. Your daughter sounds like one amazing young woman.
Yvonne said:
I know. I have to keep reminding myself that she is still only 14. SO YOUNG.makes me so mad that this had to come along and settle in to our lives at the time she was just dealing with finding herself …
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Yvonne said:
Reblogged this on time to consider the lilies and commented:
The first time I realized my breast cancer was not just about me was when my daughter decided to break her silence about it. In her own way. On Facebook. On World Cancer Day 2012. Thus, this is a day for speaking up and out . . .
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