Tags
Advocacy, AstraZeneca, breast cancer, Breast Cancer Action, breast cancer epidemic, Culture of Cancer, Feminism, mammogram, National Breast Cancer Awareness Month, Pink Ribbon Culture, Profits before patients
Time to remove the pink ribbons from our lapels and gorge ourselves with Halloween candy. Tomorrow, when November comes, our grocery stores will turn from pink to the amber hues of Thanksgiving, and before we know it, we’ll be decorating Christmas trees, in the spirit of goodwill to all men.
Tomorrow on November 1st, after an interminable month of pink ribbons and races, I will still have breast cancer. I haven’t made the five-year mark yet so we can’t say it’s in remission, and in spite of all the stories we hear about women who have been “cured,” the fact is that breast cancer may recur at any time. Long term remission is just not the same as being cured.
If I sound angry, it’s because I am. Over this past October, nobody told me why I got sick or why my friend Heather got sick or why some of our blogging friends were killed by breast cancer this year. Again, we heard the unrelenting message that the answer to the breast cancer epidemic which will kill 40,000 women in the United States again this year – is to get a mammogram, feel the boobies, and raise more money for “cancer research.”
I didn’t used to mind being bombarded with these messages. I gladly handed over my well-earned cash for the products emblazoned with the ubiquitous pink ribbon, I laced up my running shoes, paid the registration fees to the Susan G. Komen Foundation, and I walked, I jogged, I ran for a cure.
Then breast cancer got me. Why me? Nobody could tell me otherwise, so I blamed myself. Was it because I hadn’t done my self-exams or breastfed my baby or exercised enough or had one too many glasses of red wine? But there was no family history, and I’d gone for all my mammograms. I had none of the risk factors. Then I found out that less than 30% of people diagnosed with breast cancer are genetically pre-disposed, so I began thinking about the environment. Why the silence about toxins and environmental carcinogens? Shouldn’t the environment be part of the international conversation during Breast Cancer Awareness Month (BCAM)? Especially in America, where, as the President’s Cancer Panel reported in 2010,
“the true burden of environmentally induced cancer has been grossly underestimated, and the American people—even before they are born—are bombarded continually with myriad combinations of these dangerous exposures.”
Chilling to think of babies being born, already polluted. But – and this should stop all of us in our tracks – under the current law, only 200 of the more than 80,000 chemicals in use in America have been tested for safety. These chemicals are found in products we use every day – clothing, cleaning supplies, plastics, perfume, paint, you name it. Industrial chemicals – unlike pharmaceuticals or pesticides – do not have to be tested before they are put on the market.
Surely the people behind BCAM would want the country to be aware of this? Just who are those people anyway? Well, allow me to introduce you to AstraZeneca, the pharmaceutical giant that came up with the idea of turning October into the month to be aware. As such, all official BCAM materials must have AstraZeneca’s stamp of approval before being released. In those materials, you will find an unflagging focus on awareness and getting mammograms, but you will not find any mention of environmental carcinogens or the need to find what causes or how to prevent breast cancer in the first place. Surprised? Don’t be. AstraZeneca is also the third largest producer of pesticides in America, making billions annually. Every day, the chemical plants at AstraZeneca release potential cancer-causing toxins into our environment. At the same time, AstraZeneca owns Salick Health Care, the leader in hospital based cancer centers.
Oh. Lest I forget, AstraZeneca is the leading producer of Arimidex and Tamoxifen. That’s right. Tamoxifen, perhaps the most prescribed drug for the treatment of breast cancer in pre-menopausal women. October has been astronomically profitable for AstraZeneca, on the one hand selling its cancer treatments, and on the other producing pesticides and a tidy profit. It makes sense, I suppose. If I were in charge of AstraZeneca, I would probably have figured out too, that more awareness means more mammograms, more diagnoses of breast cancer, more Tamoxifen sales, more cash. How much cash? Well, in 2009, AstraZeneca reported sales of 32.8 billion dollars. And that, my friends, is a bitter pill for me to swallow every night at 9 o’clock.
Surely there’s a way to use October to bring attention to all of this? Breast Cancer Action thinks so. A national, feminist grassroots education and advocacy organization that works tirelessly to end the breast cancer epidemic and does so without accepting any financial contributions from cancer treatment facilities, pharmaceutical companies, health insurance organizations, chemical manufacturers, oil companies, or tobacco companies, it is the ONLY breast cancer organization I support with my time and money.
This year, when they launched their Toxic Time is Up! campaign, I jumped at the chance to help. What a brilliant idea! BC Action needed volunteers to collect petition signatures at October breast cancer walks and runs all over the country. With droves of people out in pink, committed to supporting an end to breast cancer, it would be easy to get hundreds if not thousands of signatures on the “Toxic Time Is Up! Demand Safe Chemicals for All” petition. All I had to do was collect the signatures, and BCAction would deliver them directly to the committee in Washington DC in charge of this critical cancer prevention legislation.
So off I went, armed with my stack of petitions, to the American Cancer Society’s “Making Strides Against Cancer “ walk in Tempe, Arizona. Incidentally, Chevrolet donates $10 for each test drive to the American Cancer Society’s “Making Strides Against Cancer,” but Chevrolet says nothing about the auto factories that expose women to all manner of toxins including those benzenes used to manufacture rubber tires, or the chromium and nickel used in welding and machining, or the formaldehyde that is a vital ingredient in the manufacturing of plastics and textiles. All linked to an increased risk of cancer, all covered up in October, bathed in pink.
Naturally, I made my way to the American Cancer Society’s table, never for a moment imagining that they would not only not sign the petition but that they would tell me I was “soliciting” and needed to leave, that they had paid to be there. I pointed out that I had paid too – with my right breast and ongoing treatment – but it mattered not. They wouldn’t even listen to what I had to say. When I asked one young woman why she was there, she said “for breast cancer.” So she was there for me. Right? I’m not so sure. She just did not want to listen. Not when I tried to tell her about the chemicals in the shampoo she used that morning or the bisphenol A (BPA) in the linings of some of the canned goods in her pantry, or perhaps the flame retardants in her couch or the nonylphenols in her laundry soap. So I walked away.
I lost count of the number of people who refused to sign. I can’t help being angry at the team of women dressed in pink poodle skirts and pink wigs ostensibly “making strides for breast cancer” who told my daughter “no thank you” when she asked them politely to sign up to support an overhaul of the 1976 Toxic Substances Act. One of them had the nerve to tell her she wasn’t even around in 1976.
And then, as though I were committing a crime, two police officers approached me and informed me that I needed to leave.
Perhaps if I’d worn a pink T-shirt or a baseball cap with the Chevrolet logo and a ‘I am a Survivor’ badge, they would have let me stay.
I’ll know better next year.
The Accidental Amazon said:
*sigh* I just read Lauren’s current post on After Five Years, in which she articulates this experience metaphorically. And essentially asks the question, “What now?” (http://afterfiveyears.com/2013/10/31/ask-for-the-cure/) Your experience so astoundingly illustrates what’s wrong with Pinktober. The irony is beyond belief. How do we get through? How do we get the real message across? How do we reach all these people, who believe in their good intentions? How do we harness all this energy, all this flurry of activity that is devoted to the pink party, and steer it in toward a more pertinent course?
I don’t know, Yvonne. But these are questions I’m going to be pondering & trying to write about in the next year, hoping we can answer them for the better. xoxo, Kathi
Editor said:
Thanks so much for the link to Lauren’s blog. Mind you, I have to admit that October tends to bring out the “ranty she-wolf” in me too.
I think if we ponder these questions, maybe we should do it in pink. At least that will get us in the door.
Lots of sighing and gnashing of teeth
Deborah Moran said:
This is you at your feisty best. Thank God for people like you.x
Editor said:
Feisty? Moi? it’s the Norn Iron in me.
xx
Claudia Nixon Fauver said:
If I had been there and you approached me, I would have helped you get signatures on the petitions. I agree with everything you said, and I think it was a wonderful article. I’m now 6 yrs out from diagnosis (Inflammatory Breast Cancer, stage 3b) and currently NED (no evidence of disease). I’ve lived to see my oldest granddaughter get married, her hubby graduate from college, and their daughter being born. She has just had her 2nd birthday. I am very blessed.
Editor said:
Thank you so much, Claudia. I am so glad to hear you are well and able to enjoy all those milestones.
To sign the petition, just visit Breast Cancer Action: petition:
rustylily said:
God bless you Yvonne. I echo the above comment.
karen sutherland said:
dear Yvonne,
I am so sorry you had to endure such indifference – but more than sorry I am SO ANGRY! for years and years the toxic chemical issue has evaded major attention, both with regards to breast cancer and many other types of cancer and birth defects. I was stuptified to learn from your post today how few chemicals used by us every day require testing for safety. and ahhhhh – AstraZeneca, what an operation they have going. one could feel they just want to bang their head against a very solid wall, then there are people like you, who refuse to be silenced, and take the time and effort to tell the truth. thank you, my friend, thank you.
much love and light,
Karen
Editor said:
Karen, it just enrages me.
October really is what bc action call “Breast Cancer INDUSTRY month” and I am so glad to see the back of it. I can’t tell you how much I hate taking those pills – more than the weight gain, the hot flashes, the memory loss, is the knowledge that my cancer helped make a profit.
A look at all their “pinkwashing” sponsors makes it pretty damn clear why Komen isn’t talking about the environment causes of breast cancer in October.
Remember to sign the petition – they have 30,000 signatures already
Thinking of you a lot, especially as you brace for the first holiday season without Hugh. It must be so hard.
xo
Ruth Coates said:
I had this same reaction when I was trying to get a booth at a Komen event in my town to draw attention to Inflammatory breast cancer. One of my IBC survivor friends quoted a saying of “No Lump, Still Cancer”. The then president of this chapter of Komen said because their main focus is mammograms she didn’t want to confuse people with a table talking about how IBC is undetectable with a mammogram. I countered with the fact that these are all fairly educated people and that they probably could handle the facts That was back in 2007. Today they listen to me, and will grant me a booth, but they put in their brosures now that if you’re walking you can’t hand out any other literature that is not Komen approved. People just don’t want to change ideas even when the actual truth hits them in the face and straight from someone who lives the truth every day! Great blog!
Editor said:
Wow. WOW. Mammograms = money. Lots of it. I’m so sick of this nonsense about “confusing” people. What they really mean is you might divert attention from their profit-making propaganda about early detection (via mammogram) is the same as a cure. They literally cannot handle the truth because it means handling a drop in profit. Oh, it just makes me so angry.
The very fact that you had to fight for a booth AND refrain from giving out “confusing” literature speaks volumes, Ruth.
In your corner.
Elizabeth said:
I adore you. The whole system is beyond f**ked up, and it’s not limited to breast cancer. November is Epilepsy Month and I cringe, just cringe and cower at anything other than education about epilepsy, its prevalence (nearly 2% of the population), its death rate (50,000 people in America die each year from seizures), etc. etc. When I think of the difficulties around getting medications, the hoops one must jump through — well, I’ll go off on a long tangent and hijack your post!
Thank YOU for educating me about this. I’ve always shrunk from the excessive pink stuff in October, thinking that at least people are getting educated about something that used to be verboten, BUT the points you make about Big Pharm, about chemicals, about the industry and business that is cancer are so powerful.
Keep going.
Editor said:
Elizabeth, it’s disgraceful. Really. I had no idea that so many people die from epilepsy. I don’t understand (well, I do, but it enrages me) why breast cancer is the disease that garners all the attention. And it’s always the wrong kind of attention. It’s glamorized and feminized. It’s “the good cancer” … the way we’re manipulated into accepting that awareness is enough just sets me ranting.
We’ll both rave on …
speccy said:
I read this a few days ago when in a fog, and was confused. My brain is a bit more clear now, and I understand why I was confused- the world does not make sense. How dare the pink fluffy people treat you both like that? Outrageous. You can’t talk about your experience or how people are being duped for profiteering because it’s not ‘on message’…. Rage.
You may be right- the undercover pink route may be the way to not be arrested. Arrested? For having opinions formed by experience of a cancer that mammograms didn’t pick up? You old subversive, you 😉
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