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breast cancer, Breast cancer as family issue, Breast Cancer Treatment, childhood, children of cancer patients, density, diagnosis, mammograms, Mammograms, Memoir, Mother daughter relationship, Pink Ribbon Culture, reconstruction, Stage 2 breast cancer, talking to teenagers about cancer, Treatment, war metaphors, Wilfred Owen, World Cancer Day, Writing
My breast cancer is not just about me as I discovered when my daughter decided to break her silence about it. In her own way. On Facebook. On World Cancer Day 2012. Thus, on a day designated for speaking up and out, I share with you her words and mine from February 4, 2012 . . .
The Real Warrior in our House
I didn’t know about a World Cancer Day. Until today, I’d known only about Breast Cancer Awareness October when the world turns pink for an entire month, so when I detected the lump on my breast on October 30, I should have been grateful for having made it until the end of the pinkest month blithely unaware that cancer had come calling. Since then, I swear I have encountered more metaphors of war in breast cancer literature, than I ever found in my collection of Wilfred Owen’s poetry and I am uncomfortable. Within the context of breast cancer, I show up – albeit reluctantly – for every appointment, procedure, and surgery. As a cancer patient, I am doing what is expected. I am being treated. Obedient. Not battling. Not a warrior in pink.
I cannot say the same for my darling girl. Just a heart-beat ago, she was so tiny, asleep and swaddled, snug in the space between the crook of her father’s arm and the tips of his fingers. Safe and secure. Then, too soon, fourteen and tall, impersonating “strong and stoic,” leaning on her beloved dad and he on her as they wait together for surgeons bearing good tidings. Neither feels safe or secure. She is fighting so hard to keep the tears from falling, squaring up with false bravado to keep the fear at bay, to confront the panic that her mother might die. Oh, how she hates to carry the mantel of “kid with the sick mom.” She wants her teachers to know nothing about it in case they might feel sorry for her and give her a good grade out of sympathy. Mostly, she doesn’t want her friends to feel awkward around her, to tiptoeing as if on egg-shells, afraid to say “cancer.” A quick study, she has grown keenly aware of the pink stuff of breast cancer and is confounded by it, not knowing just the right thing to say about all those “I love boobie bracelets” still wrapped around teenage wrists when her instinct is to defend me because I was unable, technically, to “keep a breast.“
Remember Fourteen? It was that time reserved for rebelling a bit, rolling your eyes at your mother’s taste in clothes or music because, well, she was your mother and therefore “so embarrassing.” Fourteen was for pushing boundaries and buttons and experimenting with make-up and myriad ways to write your signature or style your hair. For our girl, this rite of passage has been forever marred by her mother’s breast cancer diagnosis, before which she didn’t have to feel quite so guilty about perfectly acceptable and anticipated acts of rebellion. It is unforgivably unfair. But that’s the nature of breast cancer, isn’t it? Unfair. Lest I forget how it has interrupted her life, I am considering again today the first time my daughter spoke of the cancer that came to our house like a thief in the night.
I didn’t know – and I’m sure I still don’t – the extent to which cancer has shaken our beautiful daughter, stirred a fear that others dear to her are at risk. So when I read the note she posted on her Facebook page on February 4, 2012, World Cancer Day, I realized our girl needed to tell – to share with anyone who would listen, in one fell swoop, that cancer had come calling and that her mom was sick, to tell them that being aware means you have to actually do something. She is the only warrior here. She’s my hero. Here’s her note:
In honor of World Cancer Day and my mom, I’m telling the truth …
Each and every one of you reading this note, know this: you are important to me. And I don’t ever want to lose you. Please be aware. Do not think that just because you’re you, breast cancer won’t harm you. Infect you. Frighten your whole family. Breast cancer doesn’t discriminate. You can’t escape from it. And my mom, my dad, and I had to face up to that harsh reality. On November 11th of 2011, my mother was diagnosed with Stage 2 breast cancer. She told me everything her doctor had told her. About how she had three tumors, and how they had been probably hiding there for five to seven years. Three tumors. Three of them, just sitting in there for all that time, never to be found by her mammograms because they were hidden so well in her tissue. Fortunately, two of the three were benign, meaning they would not hurt her. They were not cancerous. However, one of them was a cancer. Malignant. My mother’s right breast had a cancerous tumor. But my mom had cancer. My mom had cancer. Mymomhadcancer. I didn’t hear much more of what she said. After she said “tumor” and that only “two out of three” were benign, it was hard to hear anything else. All I could say was, “But you’re going to be okay…. right?” I asked that question maybe four times in a row. I remember later on she and my dad told me about the next doctor’s appointment, during which she would find out which surgery was best for her. A lumpectomy or a mastectomy. It sounded like she was hoping for a lumpectomy, which would only remove the tumor. It sounded simpler, but it also meant radiation. Radiation is nasty. A mastectomy means removal of a whole breast. Soon I found out my mom’s treatment required a mastectomy. I would be out of school for a week.
That week, I stayed with my mom’s best friend, Amanda. Amanda is like our own family; she has known me ever since I was little. I stayed at her house once before, when my dad had major heart surgery. Now again, I stayed with her while my mom was going through surgery. Seven and a half hours. An entire school day of waiting. Then my dad, who waited the whole seven and a half hours in the hospital, called to tell me the news. My mom was okay. The surgeons were very happy with the results of not only the removal of the tumor, but the reconstruction of her entire breast.
I remember seeing her in the ICU, when she woke up from the surgery. Her skin was so white, as pale as Boo Radley‘s. Her normally inky blue eyes now reminded me of a colorless sky. I cried at the sight of her. She looked like my mom, only dead. She had been given lots of morphine and so much other medicine, so she was way beyond groggy. Out of it. And then she was able to smile. She squeezed my hand, and she asked me what day it was . . . four times. Thursday, Thursday, Thursday, Thursday. I cried. My dad cried. He wiped his eyes on his shirt. We just stood there crying, rejoicing that my mom was going to be alright.
After removing her original breast and the cancer, her surgeons used skin and tissue and fat from her abdomen and molded it into the shape of a new breast. It was amazing! Today, her reconstructed breast looks almost identical to the other one. Made from her own skin, it looks fine. Just a bit bruised. But those bruises will fade, and this cancer will become just a bad memory. Unfortunately, we still have some healing to do. There’s a large scar across her abdomen, and it hurts her to stand up straight. If she lifts her right arm too high, it hurts. Then there are the tubes and the three surgical drains. Attached to my mom were three long tubes which then attached to what looked like little plastic grenades. Every day, I’d help drain the bloody fluid from them and record how much on a chart. Two have been removed, now there’s only one drain left, attached to a tube from a hole under her right arm. And then there’s always the fear that the cancer may return. Yes, her cancer was removed, but maybe there was some that the doctors couldn’t find and it could scare us again. It could invade my mother’s body once more. It could invade anybody. Which is why I’m begging: get yourself checked out. Find out your breast density. Do self-exams. Please. And it’s not just women. Men can get it too. SO if you’re a guy and you’re wondering why I tagged you in this, there’s your reason. So please. My mom discovered her cancer before it had spread into her lymph nodes. She got lucky, because she found the lump by accident and because her doctor made her get an ultrasound. She learned just in time that her negative mammograms had missed the cancer.
Many women, just like my mom, never even check their own breasts, even though they have been told over and over. It is so important to know what our breasts normally feel like, so we can notice when they change. So please take the steps to know your breasts. Know your body!
Catherine - Facing Cancer Together said:
It seems very fitting to go back with this post. Can it get more powerful than your daughter’s post? I don’t know.
Yvonne said:
I don’t know, Catherine. A month or two ago, we were driving home from Scottsdale, on the same streets my husband took the night he drove her home after visiting me in the hospital. All these months later, and out of the blue, we were sitting at a stoplight and she mentioned that every light had been green that night. We just don’t take that street anymore.
Zoe said:
Sophie’s post is incredible, and on so many levels……..
This paragraph has to be one of the most beautiful expressions of love I’ve ever read:
“I remember seeing her in the ICU, when she woke up from the surgery. Her skin was so white, as pale as Boo Radley‘s. Her normally inky blue eyes now reminded me of a colorless sky. I cried at the sight of her. She looked like my mom, only dead. She had been given lots of morphine and so much other medicine, so she was way beyond groggy. Out of it. And then she was able to smile. She squeezed my hand, and she asked me what day it was . . . four times. Thursday, Thursday, Thursday, Thursday. I cried. My dad cried. He wiped his eyes on his shirt. We just stood there crying, rejoicing that my mom was going to be alright.”
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karen sutherland said:
dear yvonne,
i read your baby girl’s post with tears streaming down my face. i am so glad you re-posted it, and that you also shared how it has impacted you. perhaps the people who read it will more fully understand that a cancer diagnosis brings with it a devastating effect on the people who love us most, and is an anguish that is unimaginable unless one has walked that walk…on a path that is strewn forever with doubts, fears, and the terrible sadness of being unabe to spare one’s child from all the things your beautiful daughter has had to endure – simply because she loves you so dearly.
sophie has an incredible gift that i believe you have given her, that of being able to write so beautifully and expressively. and just as her mother has been able to be supported, comforted, uplifted and loved through the sharing of her story, i think sophie will also be able to write her way through whatever she wishes to and obtain the same rewards.
we mourn the loss of the once relative care freeness of a happy family life, unsullied by cancer and all that comes with it. when hugh and i had to tell our children – well, i would have given years off my life to not have had to do that. but as time has passed, we’ve realized that just like the vows we took in marrying,,,for better, for worse, in sickness and in health, so it goes with families, ones that are solidly based in love and loyalty and being present for one another – no matter what. as you champion your beautiful daughter in her efforts to enlighten others, her sense of compassion and desire to be there for you and for others in their darkest hours is strengthened and reaffirmed, and she will never be content with an unacceptable pink status quo.
please let sophie know just how much her eloquently and honestly written words mean to me, and how much i admire her for sharing them. her message is so powerful, so touching and so enlightening – a marvel of a young lady who is determined to set the record straight about breast cancer, on so many levels – as a daughter, as an activist, and as a loving and concerned friend.
much love to you and to sophie, XOXO,
karen, TC
pinkunderbelly said:
I cried a little (ok, a lot) reading your sweet girl’s words. What a treasure she is! Then I laughed, because I remember asking the same question over and over, too. She’s a special girl, and I know you feel lucky to have her by your side. Beautiful post.
Yvonne said:
Oh, Nancy, it was the Dilaudid, right?? Superdrug.
Yes … she is a special girl. Restores my faith in the goodness of people.
lesleypr said:
Oh Yvonne, I can barely type these words as the tears are still flowing! The things our girls have had to witness – the accelerated growing up they have had to do at a time when growing up is already the most difficult thing in the world. But Sophie is an inspiration and I’m quite sure that her heartfelt, eloquent, wise and beautifully crafted Facebook post will have impacted her peers, friends, teachers, and family members in ways she would never imagine. It may even have saved a life. She has most definitely inherited your writing talent, and I look forward to reading more of her words in the future. What a girl you have there, Yvonne. What a girl! Xxx
Yvonne said:
I know, Leslie. I need to remember it more, especially when I find myself in the middle of a tug-of-war over what she should/should not wear or why her room is a mess. None of that really matters when you stop to consider what our girls have seen. xx
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Kara Lewis said:
Yvonne – I am sending you thoughts of peace and hope and healing. I have always known Sophie was smart and insightful and brave from many years back, but her words are astounding and moving. Give her an extra hug from me, and take care.
Editor said:
Kara – it is so lovely to hear from you!! Thank you so much!
Yes. Sophie is tough without being hard and wise beyond her years I think.
Hope your girls are doing fabulously … hard to believe they were so little just a twinkling ago!!
Yvonne