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breast cancer, Breast cancer as family issue, Breast Cancer Treatment, childhood, children of cancer patients, density, diagnosis, mammograms, Memoir, mother daughter relationship, Pink Ribbon Culture, reconstruction, Stage 2 breast cancer, talking to teenagers about cancer, Treatment, war metaphors, Wilfred Owen, World Cancer Day, Writing
My breast cancer is not just about me as I discovered when my then fourteen year old daughter decided to break her silence about it. In her own way, on her Facebook wall, and on World Cancer Day 2012.
Thus, on this day designated for speaking up and out, in 2014 focusing on Target 5 of the World Cancer Declaration which is all about reducing stigma and for debunking the myths that abound about breast cancer, I share with you her words and mine from February 4, 2012 . . .
The Real Warrior in our House
I didn’t know about a World Cancer Day. Until today, I’d known only about Breast Cancer Awareness October when the world turns pink for an entire month, so when I detected the lump on my breast on October 30, I should have been grateful for having made it until the end of the pinkest month, blithely unaware that cancer had come calling. Since then, I swear I have encountered more metaphors of war in breast cancer literature, than I ever found in my collection of Wilfred Owen’s poetry, and I am uncomfortable. Within the context of breast cancer, I show up – albeit reluctantly – for every appointment, procedure, and surgery. As a cancer patient, I am doing what is expected. I am being treated. At best, I am obedient. Not battling. Not a warrior in pink.
I cannot say the same for my darling girl. Just a heart-beat ago, she was so tiny, asleep and swaddled, snug in the space between the crook of her father’s arm and the tips of his fingers. Safe and secure. Then, too soon, fourteen and tall, impersonating “strong and stoic,” leaning on her beloved dad and he on her as they wait together for surgeons bearing good tidings. Neither feels safe nor secure. She is fighting so hard to keep the tears from falling, squaring up with false bravado to keep the fear at bay, to confront the panic that her mother might die. She balks at the notion of carrying the mantel of “kid with the sick mom.” She wants her teachers to know nothing about it in case they might feel sorry for her and give her a good grade out of sympathy. Mostly, she doesn’t want her friends to feel awkward around her, to tiptoe as if on egg-shells, afraid to say “cancer.” A quick study, she has grown keenly aware of the pink stuff of breast cancer and is confounded by it, not knowing just the right thing to say about all those “I love boobie bracelets” casually wrapped around teenage wrists when her instinct is to defend me because I was unable, technically, to “keep a breast.“
Remember being fourteen? It was that time reserved for rebelling a bit, for rolling your eyes at your mother’s taste in clothes or music because, well, she was your mother and therefore “so embarrassing.” Fourteen was for pushing boundaries and buttons and for experimenting with make-up and myriad ways to sign your name (with hearts instead of dots above “i’s”) or style your hair. For our girl, this rite of passage is forever marred by her mother’s breast cancer diagnosis, before which she didn’t have to feel quite so guilty about perfectly acceptable and anticipated acts of rebellion. It is unforgivably unfair. But that’s the nature of breast cancer, isn’t it? Unfair. Lest I forget how it has interrupted her life, I am considering again today the first time my daughter spoke of the cancer that came to our house like a thief in the night.
I didn’t know – and I’m sure I still don’t – the extent to which cancer has shaken our beautiful daughter, stirred a fear that others dear to her are at risk. So when I read the note she posted on her Facebook page on February 4, 2012, World Cancer Day, I realized our girl needed to tell – to share with anyone who would listen, in one fell swoop, that cancer had come calling and that her mom was sick, to tell them that being aware means you have to actually do something. She is the only warrior here. She’s my hero. Here’s her note:
In honor of World Cancer Day and my mom, I’m telling the truth …
Each and every one of you reading this note, know this: you are important to me. And I don’t ever want to lose you. Please be aware. Do not think that just because you’re you, breast cancer won’t harm you. Infect you. Frighten your whole family. Breast cancer doesn’t discriminate. You can’t escape from it. And my mom, my dad, and I had to face up to that harsh reality. On November 11th of 2011, my mother was diagnosed with Stage 2 breast cancer. She told me everything her doctor had told her. About how she had three tumors, and how they had been probably hiding there for five to seven years. Three tumors. Three of them, just sitting in there for all that time, never to be found by her mammograms because they were hidden so well in her tissue. Fortunately, two of the three were benign, meaning they would not hurt her. They were not cancerous. However, one of them was a cancer. Malignant. My mother’s right breast had a cancerous tumor. But my mom had cancer. My mom had cancer. Mymomhadcancer. I didn’t hear much more of what she said. After she said “tumor” and that only “two out of three” were benign, it was hard to hear anything else. All I could say was, “But you’re going to be okay…. right?” I asked that question maybe four times in a row. I remember later on she and my dad told me about the next doctor’s appointment, during which she would find out which surgery was best for her. A lumpectomy or a mastectomy. It sounded like she was hoping for a lumpectomy, which would only remove the tumor. It sounded simpler, but it also meant radiation. Radiation is nasty. A mastectomy means removal of a whole breast. Soon I found out my mom’s treatment required a mastectomy. I would be out of school for a week.
That week, I stayed with my mom’s best friend, Amanda. Amanda is like our own family; she has known me ever since I was little. I stayed at her house once before, when my dad had major heart surgery. Now again, I stayed with her while my mom was going through surgery. Seven and a half hours. An entire school day of waiting. Then my dad – who waited the whole seven and a half hours in the hospital – called to tell me the news. My mom was okay. The surgeons were very happy with the results of not only the removal of the tumor, but the reconstruction of her entire breast.
I remember seeing her in the ICU, when she woke up from the surgery. Her skin was so white, as pale as Boo Radley‘s. Her normally inky blue eyes now reminded me of a colorless sky. I cried at the sight of her. She looked like my mom, only dead. She had been given lots of morphine and so much other medicine, so she was way beyond groggy. Out of it. And then she was able to smile. She squeezed my hand, and she asked me what day it was . . . four times. Thursday, Thursday, Thursday, Thursday. I cried. My dad cried. He wiped his eyes on his shirt. We just stood there crying, rejoicing that my mom was going to be alright.
After removing her original breast and the cancer, her surgeons used skin and tissue and fat from her abdomen and molded it into the shape of a new breast. It was amazing! Today, her reconstructed breast looks almost identical to the other one. Made from her own skin, it looks fine. Just a bit bruised. But those bruises will fade, and this cancer will become just a bad memory. Unfortunately, we still have some healing to do. There’s a large scar across her abdomen, and it hurts her to stand up straight. If she lifts her right arm too high, it hurts. Then there are the tubes and the three surgical drains. Attached to my mom were three long tubes which then attached to what looked like little plastic grenades. Every day, I’d help drain the bloody fluid from them and record how much on a chart. Two have been removed, now there’s only one drain left, attached to a tube from a hole under her right arm. And then there’s always the fear that the cancer may return. Yes, her cancer was removed, but maybe there was some that the doctors couldn’t find and it could scare us again. It could invade my mother’s body once more. It could invade anybody. Which is why I’m begging: get yourself checked out. Find out your breast density. Do self-exams. Please. And it’s not just women. Men can get it too. SO if you’re a guy and you’re wondering why I tagged you in this, there’s your reason. So please. My mom discovered her cancer before it had spread into her lymph nodes. She got lucky, because she found the lump by accident and because her doctor made her get an ultrasound. She learned just in time that her negative mammograms had missed the cancer.
Many women, just like my mom, never even check their own breasts, even though they have been told over and over. It is so important to know what our breasts normally feel like, so we can notice when they change. So please take the steps to know your breasts. Know your body!
Renn said:
Such a beautiful post. Such a beautiful writer, that girl of yours. She takes after her beautiful mom! xo
Editor said:
Awww, thank you S!!! She is a brave heart, that I know for sure.
ganching said:
Agree with Renn. The ability to write certainly runs in the family.
Editor said:
Aww, thanks, Anne.
Amanda Church said:
Ah Sophie, the first time I read this post I cried, a lot of water has passed under the bridge since then…..now I read it with pride in my heart, because you my dear, quite simply, you rock x
Editor said:
Yes. She is an amazing human being. Hard to read this in light of all she has been through in recent months. Rocks indeed!
blarneycrone said:
Another great writer in the family! Glad you and your new breast are doing well — if not in the pink
Editor said:
Hey Liz
Yeah. She has a very distinctive writer’s voice already 😉
karen sutherland said:
dear Yvonne,
I remember being so very blown away and so touched by what Sophie wrote on her facebook page back in 2012. I remember how you spoke of how your cancer affected her, and of your mother’s loving and hurting heart weighing so heavily. and I remember how incredibly proud you were, how you knew, …”she had to tell- and tell she did! I am so glad to read her words once again, to be astonished and so very impressed with her writing and how she expressed her feelings, how she CARED enough to share them with others and enlighten and educate her peers. out of the mouths of babes, indeed…and I am sure that all who love you feel so reassured that your Beautiful Girl, your Treasure, your Joy is right there alongside of you to be your greatest comfort during this unfathomably difficult time when you are both mourning the loss of your dearest Ken.
much love and light to you both,
Karen xoxox
Elizabeth Aquino said:
Wow. My mouth is just here, hanging open. Just wow. Now I’m off to check my breasts.
Editor said:
Yup. I never did.
Coleen VanSlyke said:
Your Sophie…yes, she has a riveting writer’s voice. But it’s so much more than that. She has a voice. No, a Voice. No, in all honesty…a VOICE. In her circumstance, at her age, she speaks of fighting…warring…against an insidious, shapeless, terrifying foe she neither knows how to engage or to stop. None of us do, and that stops so many of us from even trying. Instead, we ignore. Complete denial. We really do think that “…because you are you, breast cancer won’t harm you.” And this fourteen year old natural force has the bravery, compassion and generosity to call us, every one of us, out on that. Not only because she cares about her Mom, but because she’s assessed and faced the danger to everyone, and spoken in a manner, in her way, that focuses our attention. She. Made. A. Difference. This…this is intelligence, and love, and the rare ability to channel personal pain and loss; to stare down a numbing, blinding reality, and in the face of all that, to care far beyond herself. It wouldn’t be the last such reality, as we know now, but then it never is; it just started indefensibly early for her. This; what you’ve shared with us; this is the face and the evidence of true leadership, borne of lessons that are too hard; learned too soon.
Editor said:
Ah, Colleen, she is truly a brave heart. I am blown away by her courage and grace today even more so than when she wrote this two years ago. You’re right. She has that ability to stare right back at the monster, whether it’s her mother’s illness, or the death of her father. She is a remarkable human being, and has had to learn so much so soon. Life is not at all fair.
x
Three Well Beings said:
What an amazing girl at any age, but only 14? Her perspective is so powerful because it is so honest and represents her actual experience, not just something she “knows” about. I do believe that being given the opportunity to share her thoughts, fears and concerns so openly may help keep her from being shaken long term! My heart really goes out to her. She’s a dear!
Editor said:
Oh, she IS a dear and a brave heart. Sometimes, when I’m in trouble or wrecked with self-doubt, I ask myself, “How would Sophie respond to this at 50?” With a whole lot of grace and humility, that I know for sure.
She turned 16 three weeks after her dad died. November is the cruelest month around here. We may just delete it from our calendar!
The Accidental Amazon said:
Tears. And now, her dad…my heart aches for Sophie. And yet, what a wonder she is. Love to you both. Kathi
Editor said:
Oh, Kathi, sometimes if I let myself really go ‘there,’ I just weep for her. She is such a good and gentle human being, and so very young, that my heart breaks for her. 14, 15, 16 – such tough years, without a mom getting cancer and a dad dying. I don’t know how she does it with such grace. Every. Single. Day.
xoxoxo
The Accidental Amazon said:
She has had two amazing parents who have loved her through good and bad. That is where grace comes from. xoxo
Editor said:
Thank you, Kathi. I have been thinking a lot about grace . . . NONE of this is easy.
xo